Data Use & Researcher IdentitiesData Use & Researcher Identity (DURI) Work Stream

Creates tools to communicate who can access datasets for which purposes. Helps confirm user identity and match researcher type to data permissions.

The Data Use & Researcher Identities (DURI) Work Stream aims to provide digital solutions for communicating how data sets can be used for research, and by whom. Patients and research participants expect their personal data to stay private and be shared with researchers only under terms to which they consented. Researchers want to simplify their access to this data through a portable electronic identity that travels around the world, verifying who they are and what kind of research they do.

DURI works toward both these goals, producing standards that allow identified researchers different levels of access to protected datasets. DURI designs can be implemented in a variety of global data sharing environments.

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The DURI Work Stream helps the community facilitate and streamline data access processes by standardising researcher identity and data use.
Image summary: The DURI Work Stream helps the community facilitate and streamline data access processes by standardising researcher identity and data use.
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Technical description
Helps institutions automatically determine who is a bonafide researcher with an approved reason to access their data. Develops portable electronic identities for researchers and an ontology that matches data use restrictions to researcher purposes.
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Community Resources

Dive deeper into our Work Stream! DURI products allow institutions to automatically determine who is a bonafide researcher with an approved reason to access their data. The Work Stream develops portable electronic identities for researchers and an ontology that matches data use restrictions to researcher purposes. DURI products offer capabilities like allowing data stewards to tag datasets with permitted use terms that facilitate data discovery and access or providing a model for representing a researcher’s digital identity and data access permissions.


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  • Dixie Baker
    Martin, Blanck and Associates
  • Max Barkley
    DNAstack
  • Michael Baudis
    University of Zurich
  • Tiffany Boughtwood
    Australian Genomics
  • Guillaume Bourque
    McGill University / Université McGill
  • Sarion Bowers
    Wellcome Sanger Institute (WSI)
  • Rebecca Boyles
    RTI International
  • Michael Brudno
    University Health Network
  • Tony Burdett
    EMBL's European Bioinformatics Institute (EBI)
  • Moran Cabili
    Foundation Medicine, Inc.
  • Salvador Capella-Gutierrez
    Barcelona Supercomputing Center
  • Knox Carey
    Intertrust Technologies Corporation
  • Shu Hui Chen
    NIH National Heart, Lung, and Blood Institute (NHLBI)
  • Hayley Clissold
    Wellcome Sanger Institute (WSI)
  • Mélanie Courtot
    Ontario Institute for Cancer Research (OICR)
  • Jaime Delgado
    Universitat Politecnica de Catalunya (UPC)
  • Megan Doerr
    Sage Bionetworks
  • Marc Fiume
    DNAstack
  • Ian Fore
    NIH National Center for Biotechnology Information (NCBI)
  • Mallory Freeberg
    EMBL's European Bioinformatics Institute (EBI)
  • Robert Freimuth
    Mayo Clinic
  • Melissa Haendel
    University of Colorado Anschutz Medical Campus
  • Francis Jeanson
    Datadex
  • Giselle Kerry
    ELIXIR
  • Melissa Konopko
    ELIXIR
  • Martin Kuba
    Masaryk University, ELIXIR Cloud and AAI
  • Jonathan Lawson
    Broad Institute of MIT and Harvard
  • Fabio Liberante
    Wellcome Sanger Institute (WSI)
  • Nancy Mah
    Fraunhofer Institute for Biomedical Engineering
  • Mizuki Morita
    Okayama University
  • Nicola Mulder
    University of Cape Town
  • Jean Muller
    Laboratoire de génétique médicale (UMR_S 1112)
  • Heimo Muoller
    Medical Univerisity Graz
  • Satoshi Nagaie
    Tohoku University Tohoku, Medical Megabank Organization
  • Jamal Nasir
    University of Northampton
  • Tommi Nyrönen
    CSC – IT CENTER FOR SCIENCE
  • Soichi Ogishima
    Tohoku University Tohoku, Medical Megabank Organization
  • Laura Paglione
    Spherical Cow Group
  • Helen Parkinson
    EMBL's European Bioinformatics Institute (EBI)
  • Kathy Reinold
    Independent Contributor
  • Kurt Rodarmer
    Independent Contributor
  • Laura Lyman Rodriguez
    Patient-Centered Outcomes Research Institute (PCORI)
  • Christopher Siwy
    NIH Office of Data Science Strategy (ODSS)
  • Nara Sobreira
    Johns Hopkins University School of Medicine
  • Heidi Sofia
    NIH National Human Genome Research Institute (NHGRI)
  • Christine Suver
    Sage Bionetworks
  • Morris Swertz
    University Medical Center Groningen
  • Jonathan Tedds
    ELIXIR
  • Ilia Tulchinsky
    Alphabet
  • Susheel Varma
    Information Commissioner's Office
  • Douglas Voet
    Broad Institute of MIT and Harvard
  • Vanessa Vogel-Farley
    RARE-X
  • Craig Voisin
    Google LLC
  • Chisato Yamasaki
    National Institute of Biomedical Innovation, Health and Nutrition (NIBIOHN)
  • Ye Yan
    NIH National Heart, Lung, and Blood Institute (NHLBI), Trans-Omics for Precision Medicine (TOPMed)
  • Christina Yung
    Ontario Institute for Cancer Research (OICR), Indoc Research