Your family health history includes the health conditions experienced by your family members over the course of their lifetimes. This information helps genetic counselors and other clinicians identify a patient’s disease risk — and sometimes prevent disease from developing at all. But gathering family health history is time-consuming. Electronic tools can help patients put together their family health history before visiting the clinic, saving time.

Compiled by the GA4GH Clinical & Phenotypic Data Capture Work Stream, the Family History Toolkit offers an inventory of tools that capture family health history and a statement of best practices that covers approaches and challenges to using this information in clinical care systems.

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Benefits

• Provides an inventory of consumer products used to capture family health history
• Outlines key considerations when designing family history collection and analysis tools

Target users

Researchers, clinicians, research participants & patient communities, and public