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Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Data Use Ontology (DUO)
Allows data stewards to tag datasets with permitted use terms that facilitate data discovery and access
Patient and participant consent forms often use different language to describe how generated data can be used and reused. The lack of standard terms and definitions to describe permitted uses of data makes it difficult for data access committees (DACs) to confidently and quickly grant researchers access to data. Developed by the GA4GH Data Use & Researcher Identities (DURI) Work Stream, the Data Use Ontology (DUO) provides a standard set of terms that can be used to tag datasets with use permissions, aiding researchers in discovering data and facilitating DAC decisions in the data access process.
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Benefits
- Allows data to be tagged with consistently defined, computer-readable use permissions and optional modifiers
- Enables tagged data to be more easily discoverable and accessible
- Streamlines the process of identifying appropriate uses and users of data
Target users
Researchers, clinicians, data generators, data access committees, and data protection authorities
Image summary: DUO can help researchers discover, request, and access data, while supporting data access committees in evaluating these requests.
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Dive deeper into this product! When sharing datasets for secondary research, consent form language governing secondary data use varies widely. The lack of a standard vocabulary to define permitted secondary uses makes it challenging for data access committees and researchers to interpret how data may be used. DUO provides a list of terms in two categories: permissions and modifiers. The terms allow datasets to be tagged with their permitted uses, facilitating data discovery and the data access process. To define use permissions specific to certain diseases, DUO incorporates inward and outward mapping to the widely-used Mondo Disease Ontology. DUO can also be distributed and utilised as a machine-readable file, enabling levels of automation in the data access process and expediting researcher access requests.
Date
Version
23 Feb 2021
Date
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15 Dec 2023
14 Sep 2023
14 Dec 2020
All of Us Research Program
Australian Genomics
Japan Agency for Medical Research and Development (AMED)
Canadian Distributed Infrastructure for Genomics (CanDIG)
European Genome-phenome Archive (EGA)
ELIXIR Beacon
EpiShare
European Genome-phenome Archive (EGA), EMBL's European Bioinformatics Institute (EBI), Centre for Genomic Regulation
Human Heredity and Health in Africa (H3Africa)
Human Cell Atlas
Japan Agency for Medical Research and Development (AMED)
NIH Cloud Platform Interoperability (NCPI) effort
Trans-Omics for Precision Medicine (TOPMed)
GEnome Medical alliance Japan (GEM Japan)
Japan Agency for Medical Research and Development (AMED)
Don't see your name? Get in touch:
- Dixie Baker
Martin, Blanck and Associates - Michael Baudis
University of Zurich - Tiffany Boughtwood
Australian Genomics - Guillaume Bourque
McGill University / Université McGill - Sarion Bowers
Wellcome Sanger Institute (WSI) - Rebecca Boyles
RTI International - Michael Brudno
University Health Network - Tony Burdett
EMBL's European Bioinformatics Institute (EBI) - Moran Cabili
Foundation Medicine, Inc. - Shu Hui Chen
NIH National Heart, Lung, and Blood Institute (NHLBI) - Hayley Clissold
Wellcome Sanger Institute (WSI) - Mélanie Courtot
Ontario Institute for Cancer Research (OICR) - Megan Doerr
Sage Bionetworks - Marc Fiume
DNAstack - Mallory Freeberg
EMBL's European Bioinformatics Institute (EBI) - Robert Freimuth
Mayo Clinic - Jaime Guidry Auvil
NIH National Cancer Institute (NCI) - Melissa Haendel
University of Colorado Anschutz Medical Campus - Francis Jeanson
Datadex - Giselle Kerry
ELIXIR - Melissa Konopko
ELIXIR - Jonathan Lawson
Broad Institute of MIT and Harvard - Nancy Mah
Fraunhofer Institute for Biomedical Engineering - Alice Mann
Wellcome Sanger Institute (WSI) - Mizuki Morita
Okayama University - Nicola Mulder
University of Cape Town - Jean Muller
Laboratoire de génétique médicale (UMR_S 1112) - Heimo Muoller
Medical Univerisity Graz - Satoshi Nagaie
Tohoku University Tohoku, Medical Megabank Organization - Jamal Nasir
University of Northampton - Tommi Nyrönen
CSC – IT CENTER FOR SCIENCE - Soichi Ogishima
Tohoku University Tohoku, Medical Megabank Organization - Laura Paglione
Spherical Cow Group - Dina Paltoo
NIH National Heart, Lung, and Blood Institute (NHLBI) - Helen Parkinson
EMBL's European Bioinformatics Institute (EBI) - Kathy Reinold
Independent Contributor - Laura Lyman Rodriguez
Patient-Centered Outcomes Research Institute (PCORI) - Dylan Spalding
CSC – IT CENTER FOR SCIENCE - Morris Swertz
University Medical Center Groningen - Adrian Thorogood
Terry Fox Research Institute - Ilia Tulchinsky
Alphabet - Susheel Varma
Information Commissioner's Office - Vanessa Vogel-Farley
RARE-X - Craig Voisin
Google LLC - Chisato Yamasaki
National Institute of Biomedical Innovation, Health and Nutrition (NIBIOHN) - Christina Yung
Ontario Institute for Cancer Research (OICR), Indoc Research
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Catch up with all news and articles associated with Data Use Ontology (DUO).
