Co-Lead, Regulatory & Ethics Work Stream

Shape the direction and strategy of the Regulatory & Ethics Work Stream, which aims to develop community-driven policies, tools, and standards that address regulatory and ethical considerations in genomic research and international data sharing.

Virtual

Job Description

About the team

The Global Alliance for Genomics and Health (GA4GH) is a global volunteer standards development organisation dedicated to realising the potential of genomics in health. Supported by staff distributed across five Host Institutions (Ontario Institute for Cancer Research, Broad Institute, Wellcome Sanger Institute, EMBL’s European Bioinformatics Institute, and the Victor Phillip Dahdaleh Institute of Genomic Medicine at McGill University), members of the genomics community provide expert leadership to GA4GH’s Work Streams and Partner Engagement communities. 

The Regulatory and Ethics Work Stream (REWS) aims to create and harmonise forward-looking anticipatory data governance resources, policies and, policy tools that address various ethical, legal, and social implications of international data sharing. 

There is an open position for one of two Co-Lead positions to help guide the direction of REWS. We are inviting expressions of interest in the volunteer role of REWS Co-Lead.

Your role

This is an opportunity to be at the heart of GA4GH standards development and integration work. Working closely with  members of the GA4GH staff REWS Co-Leads contribute to the leadership and direction of REWS efforts, in line with GA4GH’s wider direction and goals, as set at an organisational level. This role involves developing the REWS roadmap strategy, identifying work that can be taken forward by the group, engaging a broad constituency of stakeholders to promote REWS and its initiatives, chairing calls, working through technical issues as a group, and building consensus. It also includes actively engaging leads, GA4GH Driver Projects, and contributors to other GA4GH workstreams to keep informed of their work and facilitate the development of cross workstream products. As REWS works with groups from across GA4GH and the world, considerable liaison work will be involved, along with the need to engage with other teams both within GA4GH and externally.

Why join us

GA4GH accelerates progress in human health by building tools that expand responsible, effective, and democratised use of genomic and clinical data.With a global volunteer community made up of hundreds of individuals from a variety of organisations and institutions, GA4GH provides an active environment in which to drive these aims forward while building on our foundational commitments to human rights, ethics, and security.

Having a truly global and diverse community of contributors and leadership is key to GA4GH’s work. We are actively pursuing strategies to increase participation of equity seeking population groups through our engagement and equity, diversity, and inclusion work. We are committed to providing an inclusive and welcoming environment for all contributors at all levels in GA4GH and welcome expressions of interest from all interested individuals.

Requirements

You have…

  • substantial experience in the ethical, social, and regulatory implications of genomic and health-related data use and sharing;
  • expertise in law, regulatory studies, public policy, bioethics, sociology, or related disciplines;
  • an ability to work effectively with, and provide leadership to, a broad range of people from multiple disciplines, backgrounds and cultures;
  • the ability to engage with others, explore multiple points of view, and build consensus around policy positions and development;
  • the capacity to identify opportunities aligned with the group’s goals and translate these into actionable plans;
  • a demonstrable ability to work collaboratively
  • an understanding of the complexity and importance of regulatory and ethics policies in genomics, with previous experience in this area, and a deep understanding of the need for standards to work internationally;
  • the flexibility required to work with collaborators in different time zones and of different cultures and to respond to your emails diligently

You might also have…

  • experience working with GA4GH or other standards development organisations;
  • experience working as part of a volunteer community;
  • experience working with a custodian of genomic data;
  • experience working on or with a project that aims to share genomic data between organisations;
  • experience engaging, or partnering with, population groups traditionally marginalised in genomic research.

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